Living with a mental health condition can be difficult, but for some individuals, it may also come with additional challenges such as developing tardive dyskinesia (TD), a persistent involuntary movement disorder associated with the use of antipsychotic medication. As a Tardive Dyskinesia Patient Ambassador for Neurocrine Biosciences, Inc., I understand the impact that TD can have on one’s daily life and wanted to share five things I wish I knew before being diagnosed with TD.
1. Understanding TD Symptoms:
TD is a condition affecting approximately 600,000 or more people in the United States and is associated with the use of antipsychotic medication. The movements associated with TD can affect various parts of the body, including the face, torso, limbs, and fingers. When I was diagnosed with TD, I was not prepared for the physical symptoms I started experiencing, such as uncontrollable facial movements and difficulty with simple tasks like walking and buttoning my shirt.
2. Knowing the Impact on Daily Life:
The impact of TD on daily life goes beyond just the physical symptoms. The reactions of others to my movements, the way I feel about myself, and the challenges it creates in my routine were all aspects I was not prepared for. Raising awareness about TD is crucial not only for those living with the condition but also for the general public to foster understanding and acceptance.
3. Finding Support and Building a Community:
Joining a movement disorder support group after my TD diagnosis helped me come to terms with my condition and realize that I was not alone in my experiences. Building a community of individuals facing similar challenges has been essential in coping with the effects of TD.
4. Keeping Busy and Finding Purpose:
Engaging in activities that bring joy, such as listening to music, watching movies, and becoming a patient ambassador for TD, has helped me stay positive and motivated. By sharing my story, I can educate others and make a difference in the TD community, knowing that I have a purpose in raising awareness about this condition.
5. Having Open Conversations with Your Doctor:
Regularly meeting with my neurologist has been crucial in managing my TD symptoms and addressing the social and emotional aspects of living with the condition. It is important to consult with a trusted provider if you suspect you may have TD and discuss your symptoms openly to receive proper treatment and support.
In conclusion, living with TD can pose unique challenges, but with awareness, support, and proactive communication with healthcare providers, individuals can effectively manage the condition and lead fulfilling lives. To learn more about TD, living with TD, and treatment options, visit TalkAboutTD.com. Remember, you are not alone in your journey with TD, and there are resources and communities available to support you.
Please note that this post was sponsored and developed by Neurocrine Biosciences, Inc., and compensation was provided to me as a patient ambassador to share my story. Copyright © 2024 Neurocrine Biosciences, Inc. All Rights Reserved. CP-TD-US-1678 10/2024.
