Attention Deficit Hyperactivity Disorder (ADHD) is a common neurodevelopmental disorder that affects both children and adults. However, a recent national survey conducted by the University of Exeter in the UK has shed light on the challenges faced by young adults with ADHD when transitioning from children’s to adult’s services. The survey revealed significant variations in treatment for ADHD, with many young adults struggling to access the care they need once they turn 18.
The research highlighted the failure of the current system to effectively link up services for young adults with ADHD, leaving many unable to access vital treatment. More than 750 participants, including commissioners, healthcare professionals, and individuals with lived experience of ADHD, completed the MAP National Survey.
ADHD affects up to seven percent of children and up to five percent of adults, manifesting in symptoms such as hyperactivity, impulsivity, and inattention that can impact daily functioning. Failure to treat ADHD and gaps in treatment, especially during the transition to adulthood, can have severe consequences for patients and their families, including increased risks of mental health crises, difficulties in work and education, and strained relationships.
One of the key findings of the survey was the lack of consistent “shared care” agreements between GPs, mental health specialists, and patients, which are essential for GPs to prescribe ADHD medications. This lack of coordination becomes particularly problematic when young people transition to adult mental health services, highlighting a critical failure in the system. Current guidelines recommend GPs prescribe ADHD medication under a shared care agreement with adult mental health services, but the survey revealed challenges in establishing and maintaining these agreements.
Furthermore, the survey identified significant wait times for appointments with adult mental health services, leaving GPs to provide care without adequate support. This can result in the discontinuation of successful treatments from childhood, impacting patients at a pivotal time in their lives. Access to treatment for ADHD also varies among underserved groups, such as young women and individuals leaving care, contributing to health inequalities.
The survey results coincide with the announcement of a taskforce and a major review of ADHD services by NHS England, acknowledging the need for improved care for individuals with ADHD. Dr. Anna Price, Senior Research Fellow at the University of Exeter, emphasized the importance of a coordinated approach to address the challenges faced by patients seeking treatment for ADHD. She highlighted the crucial role of GPs and primary care professionals in providing shared care prescribing in line with guidelines.
In response to these challenges, the University of Exeter has established a Science of ADHD and Neurodevelopment collaboration, aiming to develop solutions to support individuals with ADHD. This collaboration involves experts by experience, healthcare providers, and researchers working together to create curated digital interventions and standardized shared care agreement templates.
The survey findings underscore the urgent need for a more coordinated and supportive approach to address the gaps in ADHD treatment for young adults. By improving access to care and providing better support for healthcare professionals, we can empower individuals with ADHD to thrive and achieve better outcomes. The establishment of the NHS England taskforce signals a positive step toward enhancing services for individuals with ADHD, promising a brighter future for those affected by this neurodevelopmental disorder.
